Once you have received a diagnosis it is important to see specialists. Moebius Syndrome affects people in different ways and as such you may need to see a range of specialists.
Your GP or paediatrician may not know much about the condition and as such you may need to do your own research. Often by speaking to other people with this condition you can find who they recommend. Don't be afraid to ask the consultant if they have seen other people with Moebius Syndrome and if not whether they can refer you to a colleague with more experience of the condition. Some consultants you may need to see include:
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Useful links for Moebius Syndrome are below. Let us know if you have any links you think would be worthwhile.
National Moebius Organisation Websites: US Moebius Syndrome website Italian Moebius Syndrome website French Moebius Syndrome website German Moebius Syndrome website Spanish Moebius Syndrome website UK Moebius Syndrome website African Moebius Syndrome website Kids with Facial Paralysis |